Hospital chronicles

Things have settled. I feel calmer.
The last week was difficult, I know I could have handled it better, but that dosnt mean that I am not proud for how far I have come in actully handling things at all.

I knew I needed the antibiotics.
My doctor knew I needed the antibiotics.
But the ward doctor didnt think I did.
the problem partially comes from my hospital records being spread through so many various hospitals.
Even my local hospital is split into 2. I see my doctor in clinic in one part, but he admits me to the ward in another part. Simple enough, but the notes he writes, dont come to ward.
The other issue being that my body dosnt do anything normally.
We know my lungs are infected. We know the infection is wrecking havoc on my body.
Yet my body dosnt show the usual signs like tempertures or raised white blood cell counts.
Our theory is my body is just supoer friendly and welcomes every bug and germ in with no question. Practically sits it down and offers it tea and cakes, rather than attacking it and telling it to get out.
By this point, we know my body is odd.

So anyway, the doctor who dosnt know me, wants to follow what he has been taught as a doctor. So he didnt want me on the meds, but at the same time, he wasnt prepared to take responbility and discharge me. He was suppossed to get in touch with my doctor, but who knows. 2 days later, I was still sitting there feeling like crap, stuck in a small room all day, going crazy while it felt like no one was listening to me.

It was hard, because I have to trust that doctors know best. But to then say, well wait a minute, that is not what is planned, took a hell of a lot of stress.
But I did it. They still wouldnt listen, so I packed my bag and told them I was leaving the ward. That they could phone me when  they had made a descsion on what to do. Within 20 minutes they decided that I did need the meds and I was once again all hooked up.

Just annoying that it had to get to that point.

So after having about 4 of these in 2 days, not to mention at one point having to have fingers taped to gether to support the needle.

My arms are pretty messy and I look like I have been street fight. The first rules of fight club, there is no fight club.

So a nice doctor took pity on me (was requested to and is being ultra nice to me to make up for last week) and fitted me with a long line. Which is basically an ultra long needle that is threaded in to a vein in my arm and goes right up into my shoulder. Making it a little more durable that the silly venflons.

I also managed to get out for a couple of hours the other day(Who am I kidding, I treat this place like a hotel ha. When things are going ok, I generally get all my treatments and tests and stuff done of a morning. Then after my afternoon IV meds, I go home till my night time ones. Comes in handy living close to the hospital) But, on this occasion, a friend came to visit from Wales. It was nice having a catch up. Though, she was a little taken aback that she came to visit me in hospital dn I then demanded that instead we went to the pub. haha.

Alas, it was nice to catch up. She was the same throat issues as me and it is just wonderful sometimes, to be able to say something and know that someone truly gets it. That yes, I can look good and go out for a couple of hours and nobody would know any differnce. But there is a difernce in that it takes hours to get to that point and I will need the next couple of days to recover. Alas rant over. Anyway, there are negatives and postives to both of this, but I shall leave that for another night.

I havnt seen her in a while and she commented on how long my hair had gotten. Its odd, I hadnt notice until then. But then, I had actully striahgtened it, something I have not done for about 2 years.

I have not had hair this long since I was about 16. Its odd and it annoys me but I love it at the same time. Though, I think its time for a colour. Nothing to major but watch this space I guess.

anyway, super time then sleep I think. If I can sleep. I made the mistake of sitting on my bed at home at about 4 this afternoon and the next think I knew it was 8 oops. (Just for the record, the yoghurt is the tastiest. nom I do love meringues.

Tonight's menu

It just occurred to me, that I dont think I posted any pictures of my blanket. When I was in Florida in June, I fell in love with a sort of patchwork quilt. I adore patchwork and have a bed spread on my bed, but one day hope to have some one of a kinda type ones, maybe even get around to making my own one day. But anyway, this one, was light, but I fell in love with the quote on it.

Family ties are precious threads no matter where we roam, they draw us to the ones we love and pull our hearts toward home.

Since coming home, it has lived in my hospital bag. It smells of home and fits perfectly on my bed when in hospital. Plus, I hate getting in to bed of a day, makes you feel like you are sick, so having it on my bed, not only reminds me of home, but gives me something to snuggle with of a night. And everybody comments on it. I could have sold it at least 10 times.

Mt cannula failed again and so had to be resited. Its not in the nicest of position and means and work with my hands has to be limited, but it is in and work which is always a good thing. I told the doc who put it in that he could come again, as he did it in half the time it takes most to even find a suitable place.

Least on this ward, they let me stay in charge of my own meds, which saves waiting for the nurses to figure them out and such. It makes sense for me to do them as I do them at home and dont like to get out of the habbit. The problem however, is that the drawers are getting to the point where they need to be bigger ha.

My everyday meds fit, but I need more space for dressings and such really. Plus they are discussing trying me on two new meds, which will add in as well.

On the topics of meds, tonight for supper we have an assortment of little coloured things.

The top syringe is my pain meds. The other two are used for mixing up nebulised solutions. Nebuilsers are basically liquid medication, that are put in a special machine, that turns them into mist, kinda like steam, so I can breathe them in. Thankfully I have a new machine, else what I have on this pic, would take about two hours thiry mins to run through. My machine gets them through in about 40 mins instead. My nebs of generally 4 times a day and the tablets twice a day.

And to follow up for desert

we have nice IV infusion of antibiotics. This is the good stuff, and what I am actually stuck in hospital for at the minute. But, with a bit of luck, it will all help and I will feel much better then I get out of here.
so yay.