Any chance of an extension

urgh why am I so damn tired all the bloody time!
Last night I got about 9 hours sleep with only 2 interruptions. Didnt get up till dinner time. Had my dinner and started drifting off in the chair. A bit later my friend came over and while she was talking to mum I once again fell asleep on the couch, where I remained drifting in and out for about 2 hours. trying to fix my mums computer and I literally couldnt stay sitting up so I left it broke for now. meh job for tomorrow.

But I mean come on, I'm 24, supposed to be in the prime of my life and yet I cant stay awake for more than a couple of hours.

oh well shopping with mother tomorrow. Hopefully more energy so I can walk around. Oh and I must have overdone it on the Wii the other day boxing as I could barley move my legs yesterday.

I wonder if the NHS would pay for an extension on our house? I have way to much stuff to store these days. I took these photos a couple of weeks ago.

This is my supply cupboard with dressings, filters, ties, cavalon, sterile equipment and other fun such things. On top is my home care file, suction catheters and my emergency/tube change box. I have since received another bag full of differnt dressings to add to what I already have so go knows where they are going to go.

My once beloved computer desk with my top spec machine on that I used to use for web design and programming. (That computer hasnt been turned on since October >.<)

This is Sam, by suction machine and of course the mandatory bottle of hand gel.

This is Nessie my Nebulizer (With a rather long cord so I could still do things like getting ready for college of a morning while it was running)

This is my Kit bag that I dont leave the house without. Alco gel, spare tubes, tissues, wipes, saline and filters. fun eh

My 2 weekly med supply (the other 2 weeks gets stored in cupboard whereas these go in the draw next to my bed)

And this (apart from dressings) is what I have to pack if I am going out for a night eg: 24 hours worth of
meds.

So yep, my once geeky room where the main thing was my computer system has now been taken over by med stuff. fun fun fun

Sinking

Ive been meaning to write for  few days. I put it off last night as  I was in a foul mood. I have no idea why I was in such a mood, you know when you just get in a mood for no reason and cant seem to get out of it. It was odd, as I was on my own all day yesterday, I was in isolation (I will explain i a minute) so I couldnt just go wander around the ward or anything and the staff had to gown up to come in so most of them didnt bother. Then mum text and said do you mind if I dont come in till later. She wanted to go for a walk around Birchwood and do non essential shopping and stuff) so it was 7 before I spoke to anyone properly. I spent most the day sleeping, curled up in a ball.

But as soon as she did come I didnt want her there, I didnt want to speak to her or anyone. I just wanted to curl back up and go to sleep. So I was very short with her and I couldnt help it. She started going on about speaking to one of the nurses where she works who deals with trachys and how I should have this care and that treatment and this equipment. I felt like saying I know but what do you want me to do about it. Its just so frustrating. I know they should be doing more but maybe if I was to try and speed them up it would mean me admitting how much things have got to change.

She kept going on about how I should be using my humidifier more, cleaning my tubes more often, changing my straps more often, having a new filiter every day. I felt like saying to her, well you know what, we could complain about the lack of info we have been given, but since you have complained every time I have been admitted so far its taken with a pinch of salt now. I mean last time, you had my dad fuming, you couldnt visit because 'you were too upset' and all because a nurse had canceled an appointment that I could not make it to as I was admitted. I mean really was it worth making such a fuss over something so stupid? And now that I could do with pushing them I wont because i have had it being a moaner.

So you just visited again today and im still in the same mood. I told you what Mr page had said to which you replied im sure the other doctors secretary could have told him if he was sick, so I said im only telling you what was told to me. We sat in silence then for a few more minutes until you got up and said you were going home to do some washing and that was it.

I know im not being a very nice person right now, but truth be told im struggling. I think im sinking into a bad depression. Im sleeping most the day and not talking to anyone. Building myself into a little box where no one can enter. Putting up those walls and believe me this time they are strong walls, I dont think I can take them down even if i want to. And suddenly and probably predictably, my mind races back to suicide and self harm.

I want to harm, but I know it will be messy and I dont have any dark bottoms I can wear to cover up. Different ways of killing myself are running through my mind, all the new possibilities that exist with my trachy. If only the bin hadnt have just been emptied, I could have gotten a syringe out of it and used it now. I could have been gone by tea time. I have no real means to do it in here, its so damn frustrating. Im impulsive enough that I would do it right now, without thinking about it.

Maybe its being stuck in this room too long. I say that it is approaching 3 weeks but its closer to 4 if you forget that I got out for one day near the beginning.

They say home hopefully on Monday, but I cant see it happening.

Man Im sinking low.
I hadnt realized till now how suicidal I was feeling again. But I will continue to paint a happy face on things. The staff here know me as someone who dosnt moan about being here and all the treatments and such. And I will wait. I will wait for one of them to slip up. To leave something in my room that they shouldnt. And then maybe I can act upon my desire.  I know its selfish especially this close to christmas, but I have had enough pain, enough of trying to adjust, just enough. Im sure in time they will forgive me and see that it was truly for the best.

Stressful weekend

What a weekend and its not over yet.
It started on Friday, when my friend phoned me to say she was being admitted to hospital. She had started new anti depressants but had gone into serotonin syndrome. I got lots of random texts off her that didnt make a lot of sense. by evening she was being discharged, which judging byt he way she was talking, I didnt agree with at all. She left the hospital but she hadnt been fully discharged as of then. The hospital rang her and asked her to come back as they wanted to give mer some meds. She didnt want to go back, but after a bit of persuasion, she did. All they did was give her a couple of days worth of sleeping pills. She went home took one and was out for the count.

Saturday she was hyper again, talking to her on the phone she was speaking so fast I could hardly understand her. She went out with a friend so I thought she would be safe. Her friend took her to a club, where she said people where listening to her thoughts through the music so she came home and took her sleeping pill again.

When I came online later on she was freaking out. Apparently someone was out to get her, they where outside the window and had swapped her meds as they now had a funny smell. I rang her and she said they where in her room but they had gone when the phone rang. She went to sleep but was awake fairly early. And that brings us to now. She still thinks people are out to get her, but she is hyper again.She wont go the hospital incase its them out to get her. Just wish there was more I could do. I would be down there in a shot if i was well enough.

But last night, I nearly chocked. After bragging the other day that I had gone a few days without needing my nebulizer, last night I blocked up good and proper. Got to the point where my breathing was getting stuck when i breathed in and out. I had to take huge big gasps to get it in and cough really hard to get it out. I was running my nebs again while I was doing this, but I was just about ready to say to mum get me to A&E. That would have been fun. Why is it always a saturday night? Anyway, after a lot of scary coughing, I finally managed to clear it.



Then I got some more news. Peter Chapman, the guy who I always thought had helped saved me, is being convicted of murder and is s know sex offender. Apprently he met a 17 year old girl off facebook, he was 32, and he killed her I really should remain single for the rest of my life. The last person I slept with is a known sex offender and now a murderer and the person before was a known rapist. Great choice I have in men. (gazzette article)

Pete was so kind to me. He gave me somewhere to go when things got violent with Dave and I had to get out. He went to the police with me, he held me while I sat in that horrible waiting room waiting for the police doctor to examine me. He made sure I ate and he sat and cuddle me all night when I couldnt sleep when we got back to his. When Dave went for me the first time, he pushed him into the kitchen away from me, when Dave caught up with me in the hall way brandishing his knife, Pete went and got help, even if it was to late, its the thought that counts right. He came to visit me when I was in ICU.

Even once I got out of hospital, he came to visit me a few times. He used to come the pub on a friday night with Haley and me. I was going to marry him, I decided at the time. He abused my trust then, but I never thought he was capable of doing what he has done. I was having trouble topping my phone up, so stupidly I gave him my bank card number and asked him to try from his phone. The follwoing week £30 went missing out my account to his phone. I couldnt deal with losing the trust I had in him. It was so hard to have any trust with anyone as it was and so I cut all contact with him, changing my number and such.

And until last night, that was the last time I had seen him. Pert of me is saying, how could he do that to someone after he saw what I went though and how much it effected me. Another part of me is saying maybe its my fault. Maybe, its some kind of psych compliant, kinda like he witnessed everything that happened to me and reenacted it. The girl was 17, he was 32 thats 15 years different. There was 10 years between Dave and I.


For some reason I have an urge to go to his trial. (3rd November) I know it would only cause upset. That I wouldnt be able to handle it in my present state. The urge is still there though. Didnt sleep much last night thinking about it. I cant get him out of my head. Seeing his picture in the paper just bought it all back. Which then of course had memories of him running through my head, which lead to memories of Dave running through my head, which in turn leads to even more nasty memories. Just wish my head would silence for a bit. I have to keep busy or it all starts playing through my mind. Stupid PTSD.

And of course I would normall make a post for support and I would normally talk to my friend about this, but I wont put any of it on her. Shes not well. I will tell her when she is better, but who knows when that will be. Its times like this I realise just how few friends I have these days. I guess I have pushed them all away, to be honest most couldnt deal with having a sick friend. When I first had my transplant, I couldnt do much for myself. They where young, 17/18 wanting to be carefree out having fun, not stuck with someone in a wheel chair who spent more time in hospital than out. From then we just grew further apart. And I havnt had the trust to make new friends really.

Anyway, enough depressed rambling for one entry.

Interview, surgeons, doctors and nurses

Such an exciting day.
Started off that I had to get up on a day which is normally a day off, but I cant complain as I am off all week for half term. Had to ring the doctors, who wanted me to come in right away to see a different doctor from the other day. Apparently the one I saw the other day only works Thursday and Fridays. I told them I couldnt as I had an interview to go to and could I make it the afternoon. They said they would ask the doctor if this was ok and get back to me. So there is me waiting to leave and having to hang around waiting for them to call. They said I could come in in the afternoon and made me an appointment.

Drove to college to pick Jay up and we went to our interview. The place is only small and the work they want me to do isn't that hard, but  involves talking to the person who built the machine in the company a lot. Its basically digitalizing a load of drawings to make a instruction manual. Not really computer work, but it will suffice for a placement. I now have to draw a up a proposal and submit it to them.

Then I had to drive to the other end of the city for my appointment with my surgeon. He seems pleased that things hadnt got any worse. I mentioned to him that my GP had been trying to get in touch with him and he went oh yeah, didnt know you where having a problem with your blood pressure. I felt like saying I did tell you several times while I was in that it was high you just said it was nothing to worry about. Anyway, he checked it and it was still high (180/120 Pulse 120). He said it is probably the steroids (prednisone.) He lowered my dose from 20mg to 10mg last week and said to stop it completely next sunday. He will then see me in two weeks and we will see how it is then.

I was absolutely shattered, the walk over to the hospital and back really takes it out of me and I had to stop halfway to get my breath back. So after dinner, even though I didnt have long till my GP appointment I went for a nap. (I love day sleep. 1 hour of day sleep for me is like 5 hours of night sleep)

So got to my GP appointment and told her what the surgeon had said. Apparently he is phoning on Thursday to speak to my regular GP. She said she still wasnt happy to just leave me with high blood pressure and keep checking it to make sure it is the medication. She then checked my blood pressure and it had come down to 150/100 which wasnt too bad. I explained I had only just woke up and such and that it was still high when I had it done in the morning. So she decided to start me on medication for the time being and I am to go back next week and see my regular GP. By that time I should be off the steroids and we can see if my blood pressure has normalized.

She also had my blood results from friday, well most of them, the thyroid ones hadnt come back yet. My white cell count is high and my cholesterol was high at 5.5. She said both of thee could have been due to stress and that they would be repeated next week.

So now I have had more medication added to my many tablets. I am now taking 5mg of the beta blocker amlodipine. Started it tonight so we shall see. While I was in the surgery, the nurse saw me and pulled me in to give me the flu jab. Great I thought, save me coming back, but then she read my file and saw I was on steroids but coming off them. She asked me to wait till next week for it, so I have booked in for the same time as my GP appointment. She also wants me to have the swine flu one. Not sure If im going to get that or not yet. I also need to have the pneumoccoal vaccine. Oh what joy, I will be a human pin cushion.

Im still feeling pretty low an shit to be honest. Having a lot of urges to Self Harm and have absolutely no motivation. Starting to feel suicidal again as well. I know the GP reduced my venlafaxine, but I wouldnt have thought that would have had an effect yet. She told me to lower it on friday. Just hope this is a little phase that will pass.

Going to try and force myself to work on one of my assignments tomorrow. I said ideally I wanted to get two of them out the way with by the end of this week so I had better get cracking on it. Just hope these meds dont make me to tired, I already feel drained.