Yesterday was my visa appointment in London. Long story short, I am not getting my visa. They cant issue me one under normal conditions. I can apply to homeland security and may get one, but there is currently a 6 month wait for these to come through. So once again, I have to tell my niece that she isnt getting her holiday. I feel so bad for her some times.
I also had clinic in London, mainly for a check up, but my breathing has been getting tougher and nosier. so they had a check down with the camera. Turns out, I now have scar tissue below the trach. This is not good news. We suspected that it would happen, but silently hoped that it would be a long way off yet. So next Tuesday I have to go back to see the boss and come up with a plan.
In the meantime, I am back in hospital and on my 3rd IV of the day. This afternoon they fitted a long line, which is a tiny tube that goes through a needle and is then threaded up in to the vein. It goes in at my elbow and extends to about my shoulder. These are thinner and last longer than a normal cannula, or they should. I have just had one dose of med through mine and it blocked 5 times. gah my arms are starting to look pretty shades.
So tonight I am hoping to sleep. And hoping that they come up with a solution tomorrow, as coughing and breathing is getting scary and scary is harder to come with when exhausted.
But other than that. I had a great time in London. It was wonderful to see my niece relax. To be away from everything and having fun. Acting like a 12 year old should act. And today, she has been curled up on my bed with me watching tv. I really hope that she knows how much she means to me. I will try and post more tomorrow about London and some photos.