Yesterday was exhausting, yet last night I could not sleep. I lay awake staring at the celling till at least 5. Woke up for the loo at 8 and mum woke me at 10. I felt tired upon waking, but more than that, my breathing felt tight. I ran a nebulizer, hoping that perhaps I had just been stuffy last night, slept with my mouth open and perhaps my throat had dried. I then went downstairs. Came back up a while later and sat on my bed for 5 minutes waiting for my breathing to return to a normal rate. Literally sucking the air into my lungs again, fighting back tears wanting to scream not again. Ran a couple more nebs and went out with mum.
I couldnt keep up with mums pace again. I am not sure if it was muslce pain in my legs from yesterday stopping me, or my breathing. But I do know, that I had to stop at the top of a slight slope. At a mid pace on flat land, I seem to be ok, but add any speed or gradient and my breath is gone.
The scary part about all this, this is how it started last time, when I had the stent. When the stent began to block, of a morning I would be very breathless, as the day went on and I ran more nebs, it would settle, but any sleep, would bring back the breathlessness.
I dont want to go back to how things were! I am enjoying life with air too much. I am moving around, seeing people, talking to people being active. I am catching up on what I have missed. I am having to much fun to lose my breath again. Please let this be a bad day that will fix itself.
Perhaps it all just seems worse as I am tired and sore and people keep moving the goal posts. Yesterday, mum kept telling me off for doing to much as I am 'not well' and shouldnt be doing it. She told my sister that I would probably spend most of today sleeping to catch up on rest from Saturday. Yet she woke me early this morning and after shopping, I said that I was tired. She called me lazy and told me she would not be happy if I went to sleep, that I had hosue work to do and such. gah, make up your mind!
I also seem to have developed a new air leak. I thought they had all closed. But coughing or sneezing makes a golf ball sized lump appear on my neck. I can squeeze the air out slowly, but it comes back the next time I cough.
I am under the best doctor there is for these problems, I know they will fix it if it is wrong, but lets hope it isnt. Tomorrow I shall wake up and everything will be fine once again. I can continue with helping my sister and seeing friends and catching up on house work.
On a lighter note, I never did post my hair. Though it has been hard to get a picture that shows its current color.
Kinda Blonde fading to baby pink. It will be going back to red very soon.
Crossing my fingers that all the busy activity of the weekend had just caught up with you! Take care :D
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