Monday, February 01, 2010

Finally a step in the right direction

I have butterflies in my tummy thinking about tomorrow, but I shall get to that shortly.

I am fully recovered now from my last surgery. And my voice? Well most morning I have a deep crackly horse voice and by the evening I can usually just about force a whisper out. So yeah not sure if you would call that progress or not.

So the future was not looking bright towards the whole getting on with a normal life crap. So I started researching Tracheal Transplants. Which is a really new procedure. I spoke to my surgeon at this hospital about it a while ago and he said that it will be a fair few years before it became possible for me to have it as its not a common or normal procedure as of yet.

I read this article about it BBC News. And out of interest contacted one of the professors who was part of the one unique tracheal transplant a couple of weeks ago. After a couple of emails with him, he mentioned that he thought I was an ideal candidate for either a transplant or a tissue engineered airway.

So the next step is to get a referral to his team so that they can evaluate me. He said that he is in the process of setting up a world class multi disciplinary team in London. I said that I would speak to my surgeon here in the morning and ask him to do the referral for me. To which he replied that it would be great and he will try to arrange an appointment as soon as he could once he gets the referral, with himself, the ENT surgeon and the Thoracic surgeon who all worked on this last transplant.

So wow, Im trying not to get my hopes up just yet as I know I am still a long way off. But this has to be a step in the right direction right?

So tomorrow morning bright and early Dad is coming in for ward rounds to help me explain (due to lack of voice) about having been in contact and such and to request this referal. Im nervous about what he will say and if he is able to refer me to an ENT surgeon when he knows im still under one here. But we shall see.

But isnt it nice to have a bit of good/positive news for a change in here.


  1. That sounds wonderful. I hope that you are doing well after this last surgery.